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Table two. Attributes of affected person and caregiver skilled individuals (Spherical one, n = 154 Round 2, n = 34 N = 188*)Sex Woman 134 (87) 27 (79) Male 20 (13) 7 (21) Age, y.

113 (73) 15 (forty four) Patient/relatives/caregiver instruction Significant school or fewer trade university 33 (21) six (18) Some faculty, no diploma 27 (17) nine (26) College diploma (two or four yr) forty five (29) nine (26) Postgraduate degree forty one (27) 9 (26) Affected person/relatives/caregiver employment Full-time do the job 27 (seventeen) 19 (fifty six) Retired seventy six (49) 8 (24) Time because diagnosis/essential care continue to reddit essay about raisin in the sun be, yr 16 (10) four (twelve)rn*Groups do not equal a hundred because of to missing responses or rounding. As witnessed in Table E1 in the on the internet health supplement, 264 (46. 6%) members prov >Figure one , proven in blue). Figure one. Particulars are proven for nations. Size reveals sum of Spherical 1 in blue and sum of Round two in yellow. Totals of 20 significant care–focused Professionals and 5 PREs have been discovered for Round 1-nurses’ variation (Desk E2).

Only 19 Execs were incorporated in the affected person/caregiver version (Table E3), as the affected individual/caregiver edition did not differentiate concerning pharmacologic and nonpharmacologic remedy of dyspnea, whilst the nurse model had this difference. All goods were being endorsed at seventy five% or greater. Totals of 22 adult respiratory health–focused Execs, 22 PREs, and three care procedures/clinical consequence things had been discovered for Spherical one-nurses’ version (Desk E4) corresponding merchandise had been requested in the client/caregiver variation (Desk E5). All 22 Pro and the three clinical/approach outcomes were endorsed four of the eighteen PREs have been discarded ( see Tables E4 and E5). Totals of eleven rest-centered Pros and 5 sleep-focused PREs ended up determined for Spherical 1-blended nurses’, patients’, and caregivers’ model (Table E6).

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One Professional product and all 5 PREs were discarded for deficiency of endorsement ( see Desk E6). A whole of 237 nurses provided data for Spherical two (Desk one). Like Round one, most (84%) have been female, with superior premiums of holding a college or article-graduate diploma (ninety three%), reporting teaching in their specialty spot (fifty six%), and having ten several years of expertise in their specialty area (sixty four%).

A full of 34 sufferers, relatives, and caregivers participated. Once again, most (89%) were being feminine, although there have been less respondents (44%) of 55 a long time of age. Comparable figures (fifty six%) reported a respiratory or slumber diagnosis or important treatment working experience in the previous 10 yrs (Desk two). Responses came from 267 of 271 (ninety nine%) contributors (Table E1), representing 31 diverse nations.

As revealed in Figure 1 (yellow), the the greater part were being from Europe ( n = 157 58. 8%), Asia ( n = fifty one 19. one%), and North The united states ( n = 33 12. 4%). Free text open responses in Round 1 allowed contributors to propose objects they felt experienced been missed or to advocate adjustments to existing merchandise for Round 2. These open responses have been analyzed by committee members inside each individual specialty area (M. C. , C. H. , J. G. , and G. N. ).

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People merchandise or revisions that were deemed important by the committee users have been involved in Spherical 2, and all variations have been revised with new translations into Spanish and Chinese, as required. No alterations were produced.

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